Creeping Heebie Jeebies

**Trigger Warning for some talk of Self Harm in this blog post. If you think you may be affected by this please don’t read.**

Hey there, long time no speak, and I am back like a bad penny. It seems I use this blog like I use the Mental Health Services, when the crap hits the fan I dial up the IJAR blog and unload my woes. This time it’s almost 4am and the Creeping Heebie Jeebies are settled in for the second night running. If I call it that instead of a.n.x.i.e.t.y. it won’t be as bad, and will have that jovial sense of humour I am so well known for… HA! Continue reading

We Need To Talk

Rethink and a whole host of other leading Mental Health charities and organizations have launched a campaign to try and persuade the NHS to offer Talking Therapies to those diagnosed with severe mental illness within 28 days. You can read the We Still Need To Talk Report here.

I’d like to tell you a little about my journey with Talking Therapies in the past. Continue reading

Crossroad

Last Wednesday I got a phone call from my CPN. I had been waiting for him to call me from the week before. He is notoriously bad for keeping to arrangements to call. He never runs to time in his face to face appointments either. When he finally did call it was a call I wasn’t quite expecting.

Last Wednesday, I was officially discharged from CMHT care.

I was told that I would be discharged after I had completed the STEPPS course, I didn’t really expect that discharge to come less than 48 hours after finishing it. I have mentioned before about being discharged and how I felt it was the right time and the right thing for me to be doing at this time. That being said, I do think that there should have been a more formal process of discharge other than a brief 10 minute phone call saying “See Ya”.

Sanity

Certified Sane? Who Knows

I was put on the spot and I had 101 questions running around my head except not one of them would coalesce into 1 straight forward question I could ask. I asked if I could have a day or two to get some questions together and give him a call back. This went down like a lead balloon. He gave me to the end of the day. I called him back later that day asked my questions and was wished all the best and hope not to see you again. There I was for the first time in almost a decade  out of the care of a specialist team of people who would be able to fix my broken head if things went tits up.

Moving onwards to yesterday… my 39th birthday. I am just about at a place where things are straight in my head. Each day starts with me hoping that it will be as “normal” as yesterday. Yesterday though it suddenly became clear that my story had no where to go at the moment. I am in a flux state.

When I say my story has no where to go, that’s not exactly true. As of right now I am in the process of setting up a project for people in my area with Mental Health issues, I am starting work on writing a one man show based on this blog and other bull I have written and I am doing some work as and when I can with the local chapter of Rethink. My story is going ahead and it is telling it’s own story in it’s own way. It’s just a little different to the way I have been doing it up until this point in time.

What I guess I am saying is that It’s Just A Ride, whilst not the most prolific blog in the Madosphere it’s been something I have always had for the past few years. It’s not going away, as I said the story will be told, just in a different way. I will post here when I have something to say,

For now, in between all I have mentioned above, I am about to start something I call Project 39 which will be a weekly account of things in life that have affected me during that week in my 39th year. This will be happening over on my other blog www.paulhurwood.com. I hope that you will consider coming over and following my trip through the year to come. It won’t always be pretty and I can be pretty much assured that occasionally it won’t be on time, but it should be a bit of a laugh. There will be more news on that later on today (Saturday 11th May).

Thank you for reading so far. I hope that some how you will be able to keep up with all the changes.

Here’s To Round Number 2 *Ding Ding*

Until Next Time?

Photo credit: needoptic / Foter.com / CC BY-ND

Discharged

Yesterday was a day that started way to early and finished way to late. With the exception of roughly 5 hours it was spent in hospital waiting rooms and other sundry hospital related rooms.

I was sat in an out of hours Doctors waiting room at about 11pm last night and started writing this blog post and once I finally got home at 1am this morning, I really didn’t have the where with all to finish it off. So this post is an abbreviation of what I had to say yesterday.

I had my CPA meeting yesterday. As I tweeted last Friday, I was preying for a Belfastian Snow Storm, it didn’t arrive so I had to go. I have made no secret that I have issues with my Consultant Psychiatrist. She has made some rather crazy statements in the past and I haven’t agreed with her very often. I do have to thank her for reawakening me 2 years ago when she saw that I was obviously over medicated and she was very quick in reducing my medications and really restoring me back to the world of the living.

Yesterday, I acknowledged this and we started the meeting off on a surprisingly up note. I didn’t see what follows coming. It really was a bolt out of the blue. For a start she didn’t mention the BPD/EUPD (whatever). She did however refer to my condition to be so much better than it was when she first met me. I had to agree. I have been pretty much “stable” for the past 6 months. There have been ups and downs as there always have, but with what I have learned through the groups I have attended, I have handled the issues better and better. Over the past 14 weeks with what I have learned and tried to put into place with the STEPPS group things are falling into place more and more.

One thing I have realised is that I am unsure what I should be diagnosed as. Yes, I believe I have Bipolar Affective Disorder and yes I do have SOME traits of Emotionally Unstable Personality Disorder. I don’t fit all of the criteria of the latter, but I do think that everyone in society will have traits of that, but when you add in Bipolar to the mix things are amped up and can cause some rather funky results.

Back to the CPA.

The whole meeting carried on in a similar vein. She praised me to the top of the hill and back. It was like things had magically solved themselves over the past 6 months. I felt more and more empowered by what she was saying. She made points to me that made me realise the great strides I had made.

It was decided that there would be no changes to my medication and then it happened… the BUT in every conversation I had ever had with my Consultant came. The BUT this time floored me like a prize fighter with a glass jaw.
“We are going to release you back to your GP at the end of the STEPPS group in 6 weeks time”

I was dumbfounded. My CPN had been hinting at this for close to a year, but he always made it sound like it was something happening to other patients. It was always the discussion that the services they were offering were by and far over stretched and things were changing in the way they offer their services. Yesterday I became one of those OTHER patients and my heart skipped a beat and then I revelled in the joy that other were seeing in me that I was getting better.

They laid out the plan for what will happen when this current group ends. I will be placed in to what they called “Shared Care”. I don’t know if that’s just a name they have created in my area or if it’s a national thing. It was never mentioned back up in Corby (EVER). I had questions that I needed answers to, but yesterday wasn’t the day for them. I do know that my care through the CMHT will not end they after I finish the group, there has to be a crossover period where everything is explained in full to me and my family. So you could say I found out what my birthday present will be a couple of months early.

One thing I am going to do before this whole thing happens is change my GP. I am more certain now that my current GP is not the right person for me to go through this process with. By his own admission he refers people very quickly if he is unsure. I really need support from people who will refer me if it is deemed totally necessary, but will also have the ability to take a look at my notes and be able to try and rationalise what is happening in the present moment with an eye on the past. It has always been my goal within Mental Health services to NOT be in Mental Health services. I really don’t want to be bouncing back and forward on a whim, which is what I think would happen with my current GP. So that is one more thing to be added to my list.

As the meeting was drawing to it’s natural conclusion, we discussed what I had been doing to keep myself occupied. I told her about my work with Rethink and that I had been writing more “offline” stuff. When she heard that I had been writing more it seemed that a light switched on and she remembered something she had been meaning to say. She had been to see a play about Mental Health and people who suffer from illnesses like the one(s) I do and she suggested that that could be something I could do for this area. She also suggested that I try and get involved with speaking to groups of people about my experiences within and without the CMHT and living with the Mentalz. Again this just spurred me on even more at where I cold be going in the next 12 to 18 months ahead.

I am under no illusions that it’s going to be easy out there on my own, but I do know that I have a few new gadgets to play with that might help make my days a little easier.

As a short footnote… I started writing this at 10.30pm Monday night in a Doctors Waiting Room and it is now just after 1am on Wednesday. It’s not that I am a slow writer, it’s just that I got distracted with a life that no longer revolves around my own worries of how my Mental Health is affecting me and how  I can best beat the situation.

Until Next Time…

NB – *When you read the word yesterday.. Imagine yesterday was Monday*

Sneaky

I have sat here this morning and reflected back at the past week or so and I have realised that depression has snuck up on me again. It really is a sneaky bastard. I knew I was having problems a couple of days ago where I was having increased voices in my head trouble, but this morning it’s all too evident that things are not going as planned. Continue reading

Benefits Change Everything

Yesterday was a big day for people who claim ESA (Employment Support Allowance). There was big debate in the House Of Commons about upcoming changes to the way the people who are claiming the benefit are tested. For more information about the changes read the (as always) excellent Diary Of A Benefit Scrounger . Sue Marsh lays out the changes and explains why the changes are going to be so devastatingly bad for disabled people.

Last year I made a promise that I was going to become more active in a more political way. At that time I was in a pretty good place and my benefit claim had been settled and I was ready to take the fight head on. I wanted to try and make a difference. I didn’t exactly achieve my goal but I was more active last year that I had been before.

Fast forward to the start of the Autumn last year and disabled politics took over the headlines again and things started to ramp up again. I started takiing more interest and I retweeted tweets and I read and commented on blog posts. Looking back it was a fairly lame attempt at getting involved. I knew the issues and I gave them a passing glance. As the year came to a close my health was taking a turn for the worse and I started to close down again. Weeks went by when I didn’t even open my Twitter clients and when I did I would usually just skip over the majority of tweets that had accumalated between my visits and maybe keep up for an hour or two and then I’d leave again for however long it was until I got curious again.

Now the debate rages again. Changes are afoot and I find myself getting those same pangs in my gut that I got when the talk of changing from Incapacity Benefit to ESA. It’s a messed up situation. DLA is being scrapped in favour of Personal Indipendance Payments and Work Capability Assessments are being reviewed and things are starting to worry me again.

Money is tight at the moment for everyone. At home here it’s crazy, I don’t think we (as a family) have been this broke. I don’t say this for pity or anything like that. This is just a plain fact. Circumstances are such here that Linda’s benefit is lumped with my benefit and she has just been sent the forms to fill out for a reassessment by ATOS. I am unsure what they are going to reassess her for as she has been told that she is no longer eligeble for benefits as she had claimed for over a year, hence why I am claiming for her on my claim. It’s a screwed up situation and to be honest it has added to my stress levels.

I read around on Wednesday about the upcoming debate yesterday and I got lost in my head about what “could be” and “what will be” and it scared the living crap out of me. I lost my internal shit and realised that I really was spiralling back into that place that put my Mental Health in a shocking state when I was being changed over. I have had to step back. I am making the choice not to get into the state I got into last time. I feel I am moving forward in making steps to get me out of the mire that has built up around me and my family for the past 8 or so years. I can’t afford anything to derail this plan.

To those brave campaigners, you have my full support but for now, it has to be silent support.

Until Next Time…